Ask for an appointment at the end of the day so that the waiting room is empty.
That is actually a good idea!
Awesome. Isn't it great to find a compassionate, competent doctor after dealing with one who just doesn't seem to give a crap about you?
Curious what differentiates migraines from clusters. I get migraines and I know very intimately what a "suicide headache" is.
Fortunately the Sumitriptan helps. How do they treat clusters?
Yes, it has been SUCH a relief to find her. Even though I haven't cycled yet I feel in good hands when I do. She was telling me today all about her plan for when I do. I am actually not afraid for them to start- hopefully with the new regiment I am on, I won't for a while but she and both know that by my past history I am actually past due. We are crossing our finger that the new plan is actually working.
The difference is the way the headache feels, how the act, and how your body responds although they are both vascular. My migraines are pretty much anytime, anywhere. Stress is a big trigger. I have different intensities though, can have nausea and vomiting and can be light sensitive and can be on the right or left side of my head. My grandmother had them so I have a hereditary component.
My dad had clusters. With my clusters there is vascular involvement but also trigeminal nerve involvement. 99% of the time it will start when I am asleep. It wakes me up from a sound sleep. The pain goes from the top of my head, behind my left eye, down into my left ear and down to the left side of my jaw. It feels like someone is sticking a hot poker into the side of my head but 100 times worse. Laying still makes it worse. I pace, I rock, I cry, I have banged my head into the wall. I can feel my ear canal and I want to pull my eye out of my head. I have never gotten nauseous or thrown up though. Once I got the proper diagnosis, I found out that Imitrex shots and ONLY the shots will stop it in minutes. Which is so much better than the 2 hours or so that I used to suffer from. They usually occur with a pattern. My pattern has always been every other day (or night) for 3-4 weeks. Usually at around the same time. It always took high dose steroids to break it. I knew this even before I knew what was wrong with me. My last cycle though didn't follow the pattern. I was having 2-3 a day sometimes, I had several while I was awake. Steroids did nothing. The cycle lasted 3 months.
They say oxygen will also stop it quickly. My old neurologist basically called me an idiot for asking for an O2 tank for my house. My new one wrote me a script on my first visit- she agreed that it works and works well for some people.
There has been research done that these seeds that are a derivative of LSD work wonders at breaking a cycle. They are illegal in this country but there are people who have suffered from clusters for years that got rid of them completely by steeping the seeds in water and making a tea. My new neuro and I have even talked about that. She has told me she has a pt that they have changed her life. She says flat out that she obviously can't condone them but she understands people who go that route and she would never report someone.
I would take the worst migraine I have ever had, laying on the bathroom floor, puking my guts out over my clusters any day.