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BWCA Shepherd 06-09-2014 01:30 PM

My boy has Hemangiosarcoma..I have questions
 
Hi Everyone,

My Storm had a splenectomy/tumor removed a couple weeks ago. The diagnosis is hemangiosarcoma. I am finally sort of getting used to dealing with the emotions. Anyway, I am wondering whether anyone has experience with either the "Im'Unity" mushroom supplement, which is currently involved in a clinical study at the UPenn Vet Center, or experience with chemo-related clinical studies?

I have the chance to be involved with the University of Minnesota Vet Medical Center Clinical trial, where the surgery was done. I have heard both good and bad about chemo-related studies.

Thanks

This is pretty devastating.

Todd

ksotto333 06-09-2014 06:02 PM

I don't have any knowledge, but wanted to say how sorry I am to hear of Storm's health problems...I can't imagine.

Magwart 06-09-2014 06:57 PM

I'm very sorry. Many of us have gone through losing one to hemangio. The conventional wisdom is treatment is usually a lost cause -- by the time they find a tumor, it's usually already spread to other organs. The prognosis is so poor, and the chemo protocol so ineffective, that at most you get a few more weeks, or maybe a few more months if you are very lucky. I'm positive your oncologist already talked with you about that.

It sounds like you aren't talking about the conventional chemo and are looking at something new, still in clinical trial. I've read there are a lot of new experimental approaches being tested for hemangio. The world needs better chemo for hemangio, so maybe you could be part of something that someday may help more dogs. And maybe give yours a lot more time than the older treatments.

As for I'mYunity, I recall talking with a vet oncologist about it regarding a dog with a different kind of cancer. She was familiar with it, and thought it wasn't good to use during radiation but maybe during some chemo, depending on the one used. You should definitely have that conversation with your vet oncologist -- since the chemo you are looking at is new and experimental, there may be issues with cross-reactions that they'll want to think through. Every single supplement needs to be disclosed to the oncologist when planning treatment. She even gave me a recipe card for a specially formulated home-cooked meal, so that she knew exactly what he was taking in, and in what amounts. Even the vitamins and minerals in it were carefully tracked.

You might order a copy of Dr. Dressler's Dog Cancer Survival Guide, as it has a lot of info on neutraceuticals as well as conventional therapy. It gave me something to focus on when I was reeling from my last senior's cancer diagnosis.

BWCA Shepherd 06-10-2014 10:05 AM

Thanks for the thoughts and information. Storm is sure back to normal for right now, ravenous appetite, waking me up every morning when the sun is up, so at least we have given him that. He would have perished within a day or two if the surgery was not done.

RebelGSD 06-10-2014 11:58 AM

I had the option between a chemo trial at UPenn and the mushroom trial. I went with the chemo, with the hope of buying more time. This is our story.

http://www.germanshepherds.com/forum...my-boy-hs.html

Enjoy your boy, some dogs do better after surgery than others, so you have to stay positive and make best use of the time you have.

kiya 06-10-2014 01:08 PM

I think when most find out it's too late. When we lost Cheyenne at 9yrs old we were devastated because he was never sick. He passed away in my truck on the way to the ER. He had a tumor near his heart that burst and he went into cardiac arrest, he never had a chance.


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