Mammogram / BC -another direction

Branca's Mom · 11-18-2009, 06:04 PM

Decided to start another thread about this.

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My neighbor had lost both her mother and sister in their 40's to BC and she herself found out last year that she did have the mutation. She is 41. She got mammograms and MRI's every year for the past few years. She had decided to have both breasts removed but when preparing for surgery they gave her bad news. Even though she had a Mammogram and MRI earlier this year which came up clear, she now had advanced BC. She just underwent a double mastectomy and is in her 3rd or 4th week of doing chemo. They staged her at III B I think my sister said. She is beating herself up mentally for not getting it done several years ago. She has 2 young children and feels that she will not get to see them grow up. It is very sad.

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So:

You undergo genetic testing and find out you have the BRCA gene. Would you undergo prophylactic surgery?

**Lauri & The Gang** · 11-18-2009, 06:21 PM

When I was diagnosed I was tested for the gene. If I had it I would have removed both breasts. Didn't have it.

**Lauri & The Gang** · 11-18-2009, 06:22 PM

Forgot to add - another reason I had myself tested was for my sisters and their daughters. It's an important piece of info in deciding how often to check yourself.

M&J · 11-18-2009, 06:28 PM

I wrote on the other thread, but two of my SILs (37 y/o) are stage IV. They have the mutation, as do two of their younger sisters. One sister had a preventive mastectomy last week, the other has hers next month. Both will have their ovaries removed, as well.

SimplySleepie · 11-18-2009, 07:59 PM

I have BC running down both sides of my family. Both of my grandmothers had it.

Even if I underwent the testing and found out I had the gene, I don't think I could through with a mastectomy.

Liesje · 11-18-2009, 08:26 PM

Sure as long as I could afford it!

11-18-2009, 06:04 PM	#1 (permalink)
Branca's Mom Crowned Member Join Date: Mar 2003 Posts: 6,120	Mammogram / BC -another direction Decided to start another thread about this. ****************** My neighbor had lost both her mother and sister in their 40's to BC and she herself found out last year that she did have the mutation. She is 41. She got mammograms and MRI's every year for the past few years. She had decided to have both breasts removed but when preparing for surgery they gave her bad news. Even though she had a Mammogram and MRI earlier this year which came up clear, she now had advanced BC. She just underwent a double mastectomy and is in her 3rd or 4th week of doing chemo. They staged her at III B I think my sister said. She is beating herself up mentally for not getting it done several years ago. She has 2 young children and feels that she will not get to see them grow up. It is very sad. *********************** So: You undergo genetic testing and find out you have the BRCA gene. Would you undergo prophylactic surgery? __________________ TAMMY**

11-18-2009, 06:21 PM	#2 (permalink)
Lauri & The Gang Moderator Join Date: Jun 2001 Location: SouthEastern WI Posts: 12,523	Re: Mammogram / BC -another direction When I was diagnosed I was tested for the gene. If I had it I would have removed both breasts. Didn't have it. __________________ Lauri & The Raw Fed Gang Raw Dog Ranch Tazer HIC CGC – Cocker Winnie CGC - Corgi Mix Chimanes Spice it Up Piquin (Kaynya) - Chinese Crested Sasha - GSD mix Nator von Triton HIC CGC (Mauser) - LC GSD Piquins Some Like it Hot (Spike) – Chinese Crested Piquins Too Hot To Handle - Fuego (Chinese Crested)

11-18-2009, 06:22 PM	#3 (permalink)
Lauri & The Gang Moderator Join Date: Jun 2001 Location: SouthEastern WI Posts: 12,523	Re: Mammogram / BC -another direction Forgot to add - another reason I had myself tested was for my sisters and their daughters. It's an important piece of info in deciding how often to check yourself. __________________ Lauri & The Raw Fed Gang Raw Dog Ranch Tazer HIC CGC – Cocker Winnie CGC - Corgi Mix Chimanes Spice it Up Piquin (Kaynya) - Chinese Crested Sasha - GSD mix Nator von Triton HIC CGC (Mauser) - LC GSD Piquins Some Like it Hot (Spike) – Chinese Crested Piquins Too Hot To Handle - Fuego (Chinese Crested)

11-18-2009, 06:28 PM	#4 (permalink)
M&J Knighted Member Join Date: Nov 2002 Location: Maryland Posts: 2,782	Re: Mammogram / BC -another direction I wrote on the other thread, but two of my SILs (37 y/o) are stage IV. They have the mutation, as do two of their younger sisters. One sister had a preventive mastectomy last week, the other has hers next month. Both will have their ovaries removed, as well. __________________ Mary I got a dog for my husband. It was a good trade. LILLY and RUDY In Memory of MADISON, The King 12/89-6/04 In Memory of JAKE, The Perfect Dog 9/01-11/02

11-18-2009, 07:59 PM	#5 (permalink)
SimplySleepie Knighted Member Join Date: Apr 2005 Location: New Jersey Posts: 2,949	Re: Mammogram / BC -another direction I have BC running down both sides of my family. Both of my grandmothers had it. Even if I underwent the testing and found out I had the gene, I don't think I could through with a mastectomy. __________________ Ghost v Eichenluft

11-18-2009, 08:26 PM	#6 (permalink)
Liesje Crowned Member Join Date: Mar 2007 Location: Grand Rapids, MI Posts: 12,962	Re: Mammogram / BC -another direction Sure as long as I could afford it! __________________ UCH Alta-Tollhaus-Krieger Lamb Chop FO OB1 CL1R CL1F RA TT HIT TDI CGC VPC's Coca-Cola HIT CGC SG UCH Alta-Tollhaus Bono SchH1 AD T1 FO PA CL1R UNJ UCA HIT TT CGC OFA SG Pantalaimon vom Geistwasser BH AD HIT CGC

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